The center provides information to people throughout the U.S., Canada, and Europe. We have a registry of over 24,000 patients, and we have mailed over 30,000 packets of information to people worldwide. The center receives patient referrals from the American Lung Association, National Organization for Rare Diseases, National Institute of Health, Physicians, Hospitals, and many organizations. We have an ongoing research study of the symptoms and demographics of Sarcoidosis patients.
The results of our 3rd study, based on 1,000 patients was presented in England at the World Conference on Sarcoidosis. We have over 900 people participating in our networking program. Other services include physician referrals, an annual conference, speakers, assistance in the development of self-help groups, and our annual Sarcoidosis Awareness Day Celebration.